We’re going back in. Heaven help us. As you read this, we have headed back in for a repeat EEG.
Yeah, because the first one was sooo much fun.
Believe it or not, since I first blogged about the horror that was the EEG placement back in September, we are now returning for a repeat performance. The EEG is again, the 24 hour ambulatory, glued to the head variety with the backpack to measure what seizure activity there may be during a typical 24 hour period (and I do use the word “typical” with all manner of looseness).
What is happening is that we are (believe it or not) coming up on a six month check up for my son’s seizure medications. Before that appointment, our neurologist wants the results of this EEG, my son’s complete blood levels tested, and a follow up psychological test administered and scored. How does that sound for good preparation? Great for him. Not so great for Toots and me. But, you know, details… details…
Like actually getting the child through that 24 hours with glued electrodes attached to his head. Simple? Oh yeah (insert heavy sarcasm here). Especially given that my kid cannot stand anything touching his head for more than 3 seconds at a time. Those cute little shots of him in sunglasses, like this?
No more than 20 seconds after these shots were taken or between shots – those glasses were off. Hats? Maybe – if we’re lucky they will stay on 60 seconds before he pulls them off. Headphones are absurd, as are earbuds. A comb is torture and water should be branded “water torture” during the shampooing of the hair. A hair dryer? I might as well be setting him on fire.
So, laying him down on a table for an hour while tons of electrodes are glued and attached to his head while they blow air on the glue to dry it is, naturally, going to be a picnic.
This time, we are having the procedure done in the same building as our neurologist’s office. Our neurologist’s physician assistant will be administering the muscle relaxant in the 30 minutes before the procedure commences. This place really knows what they are doing and I’m hoping and praying this procedure goes much more smoothly than the horrific experience we endured the first time that resulted in this letter. [As a side note, I did get the obligatory letter back after the conclusion of the hospital’s “investigation” into my complaint. They assured me they intended to perform additional training and review with their staff and gave me other blanket assurances admitting no blame for anything. I really expected nothing better. It was such a load of liability-avoiding crap in their letter, I never followed up here with their response. Needless to say – I will not be trusting my son in their care ever. again.]
There is nothing worse than your child crying out for you to rescue him/her from a medical procedure that is causing them sheer torture when you know your child has to endure the procedure for the test results. It broke my heart when they strapped him down to remove the leads last time while he cried and struggled. I will not let it happen again no matter what I have to do.
Can you tell I’m not looking forward to this? I’ve said nothing to indicate my feelings to my son. I have calmly prepared him for the EEG. And when I first told him, the first thing out of his mouth was, “No EEG!” I have promised the carrot – the Hot Wheels Boneyard Bash Crash Set for monster trucks (thanks to Target for putting it on sale today!) which will be opened and heavily played with once the leads are attached and he has returned home.
They better do this right or I may have to do my own version of Boneyard Bash to someone… I’m headed in ready to rumble this time. Yeah, yeah, I’ll be nice – until someone gives me a reason not to be. . .